Part of our mold issue the ceiling had just a small brown spot for years until a big snow melt then it grew..Took another year for me to learn it could possibly have mold hidden and boy oh boy it did ...
Saturday, April 23, 2016
Going Home today ....
Where I belong..... for now and hopefully for good yay....https://www.youtube.com/watch?v=7bnX-6sJZBw&feature=youtu.be
Friday, April 22, 2016
Sounds like my hosue will be done tonight
The plan is to go home tomorrow ...Then the big work starts and I know we are probably going to regress in our heath while I sanitize the whole house ...But looking forward to going home ...Of course the forecast is for rain off and on for the next week that interferes with my plans of sending the boys outside for the daytime hours ...Not sure how things will play out but I am looking forward to getting started ... today I have a head ache and a toothache I will go in next week to see about getting the molar pulled that was a failed root canal I just spent $400 like 2 months ago to see if it could possible save my tooth but it don't seem like that's going to happen ..That tooth has been a thron in my side for too long and I read that it can carry infection that could prevent me from healing from the mold issues so its going going going to be gone ...
Wednesday, April 20, 2016
A idea I had last night
I
was thinking that we should put plexiglass on the wall behind
the washing machine and under the sinks so we could look in the walls
more often and see if any leaks develop ...I don't know... to me it
sounds like a good idea ...but sometime I guess my ideas are crazy LOL
Ear infection.. Mold fighting back...
Finally after almost 3 weeks including 3 trips to urgent care and 2 doses of antibiotics and some steriods Andrew will get into the ENT tomarrow for his ear ...Antibiotic are bad when your dealing with mold /candida issues, but I don't know how to clear this stuff up naturally like ear infections I don't like to see my kids sick or in pain ... Hopefully tomorrow we can get to the root of this ear infection this is only the second one he has had in his life..I feel like mold is a beast and its doing everything in its power to overcome us, one way or another something like
Mold saying this " You leave me, and have people come and tear me out of your house , well then I am going to hunt you down and give you bacterial infections then you will have to take me {{ antibiotics}}} and I will grow yeast in you "
I swear it feels like we are fighting for everything, our health, our home, our sanity ... Honestly we are fighting it there is no 'feel' about it ...we are in a battle and have been in it with a sneaky army of poisons...
I read something this morning and wow the light clicked on about antibiotics you know when mold grows in the petri dishes and they have that circle around them that is clear and bacteria wont enter that is mycotoxins OMG it makes since I never made the mold / antibiotic / bacteria connection other than knowing penicillin is made from mold its actually molds army that its made from and the army we our doing battle with ....pretty crazy huh ...and you know how everything is becoming resisitant to antibiotics well seems to me that is mold winning the war ...so its not just my family at war its honestly the whole world because when antibiotics stop working for infections then things are going to be bad ...People are going to die from things we now just pop 10 days worth of antibiotics for ...
Also Andrews dark circles were improving but now since the leviqin they are getting darker again so there is something to this I am sure of it ...I am not doctor or scientist just a mom who is trying to fit this crazy ass puzzle together
Mold saying this " You leave me, and have people come and tear me out of your house , well then I am going to hunt you down and give you bacterial infections then you will have to take me {{ antibiotics}}} and I will grow yeast in you "
I swear it feels like we are fighting for everything, our health, our home, our sanity ... Honestly we are fighting it there is no 'feel' about it ...we are in a battle and have been in it with a sneaky army of poisons...
I read something this morning and wow the light clicked on about antibiotics you know when mold grows in the petri dishes and they have that circle around them that is clear and bacteria wont enter that is mycotoxins OMG it makes since I never made the mold / antibiotic / bacteria connection other than knowing penicillin is made from mold its actually molds army that its made from and the army we our doing battle with ....pretty crazy huh ...and you know how everything is becoming resisitant to antibiotics well seems to me that is mold winning the war ...so its not just my family at war its honestly the whole world because when antibiotics stop working for infections then things are going to be bad ...People are going to die from things we now just pop 10 days worth of antibiotics for ...
Also Andrews dark circles were improving but now since the leviqin they are getting darker again so there is something to this I am sure of it ...I am not doctor or scientist just a mom who is trying to fit this crazy ass puzzle together
Tuesday, April 19, 2016
Notes from my FB though the years of being sick
Total sleep time 323
sleep latency 45 minutes
REM sleep latency 380 minutes (don't know how that could be higher than I slept maybe its supposed to be 38 minutes)
436 arousals and 38 awakenings
sleep efficency 59.7%
stage 1 sleep 14.6 %
stage 2 sleep 72.4%
stage 3 sleep 3.7%
REM sleep 3.7%
396 obstructive apneas
78 obstructive Hypopneas
average duration 19.2 seconds
some of the obstructive Hypopneas 38.5 seconds
oxygen at its lowest was 76%
and I had a total of 44 minutes with my oxygen below 90%
Here is a link to a page that explains more about what the numbers mean
http://apneasupport.org/
I can't wait to get my cpap machine.... I go for another sleep study tomorrow night to test out the cpap machine.. the doctor said I might need to get a bipap machine that kinda breaths in and out for me because of how bad my apnea is ..
No wonder I am so darn tired all the time ...
sleep latency 45 minutes
REM sleep latency 380 minutes (don't know how that could be higher than I slept maybe its supposed to be 38 minutes)
436 arousals and 38 awakenings
sleep efficency 59.7%
stage 1 sleep 14.6 %
stage 2 sleep 72.4%
stage 3 sleep 3.7%
REM sleep 3.7%
396 obstructive apneas
78 obstructive Hypopneas
average duration 19.2 seconds
some of the obstructive Hypopneas 38.5 seconds
oxygen at its lowest was 76%
and I had a total of 44 minutes with my oxygen below 90%
Here is a link to a page that explains more about what the numbers mean
http://apneasupport.org/
I can't wait to get my cpap machine.... I go for another sleep study tomorrow night to test out the cpap machine.. the doctor said I might need to get a bipap machine that kinda breaths in and out for me because of how bad my apnea is ..
No wonder I am so darn tired all the time ...
So
my doc thinks that I have a false positive for a blockage in my
heart.....This happens in 10% of tests and there is no way to know for
sure if its really negative unless I have a heart cath.............I
really like this doctor, he is very down to earth and nice and has been
doing this for years.... he listened to everything I had to say and
my worries........ he felt so bad that he had me take this test now, he
was so positive that it would just be normal so for this to happen he
was a bit dumbfounded LOL I don't think he totally understands that odd
stuff like this happens to me and/or my kids quite often :-/....he let
me decided what I think I should do ....sooo right now I am just going
to get my gastro problems fixed, see the ENT about my vocal cords to
see if either one of those fixes my breathing problem and if not I am
going to call him and we will discuss the cardiac cath then ...
Gosh you guys this is so frustrating knowing what to do.......
if its something rare or off the wall it usually happens to me or my kids.....How come it can't be the really awesome stuff like winning 30 million in the lottery, ok so I hardly ever buy tickets maybe that's why I haven't won....so anyways here I am basically back to square 1 of why I can't breath right :-(
Maybe I should start smoking again since I am so darn healthy :-) I think my heart and lungs are rebelling against me for taking away the nicotine...You know this doc and the pulmonoligist both think its stress related, maybe smoking really did ease my stress levels more than people realize ..Its just so expensive, honestly though, I think it would be much cheaper then all I have spent on doctors and medicines hmmmm and I loved smoking........ I quit for my health, and that has got me nowhere... I have learned that if your not getting the you need to quit smoking lecture, you get the your to fat lecture, now that I have been loosing weight I wonder what lecture will be next......... I am guessing it will be the you know your getting older lecture :-)
here is a link that talks about the test I had
http://www.heartsite.com/html/
if its something rare or off the wall it usually happens to me or my kids.....How come it can't be the really awesome stuff like winning 30 million in the lottery, ok so I hardly ever buy tickets maybe that's why I haven't won....so anyways here I am basically back to square 1 of why I can't breath right :-(
Maybe I should start smoking again since I am so darn healthy :-) I think my heart and lungs are rebelling against me for taking away the nicotine...You know this doc and the pulmonoligist both think its stress related, maybe smoking really did ease my stress levels more than people realize ..Its just so expensive, honestly though, I think it would be much cheaper then all I have spent on doctors and medicines hmmmm and I loved smoking........ I quit for my health, and that has got me nowhere... I have learned that if your not getting the you need to quit smoking lecture, you get the your to fat lecture, now that I have been loosing weight I wonder what lecture will be next......... I am guessing it will be the you know your getting older lecture :-)
here is a link that talks about the test I had
http://www.heartsite.com/html/
After
my Ablation ((which they don't use propofal for anymore and I am
totally upset about that, because I had to swallow that tube before I
was totally asleep not fun !!!)) anyways My doc told a story about
another of his patients that had this barrettes and decided to just get
endoscopy to watch it each year, instead of getting the RFA as I am...
One time she had just a little spot of cancer that was taken out, but
it was already to late and she died 4 years later ..I am guessing she
died fairly recently because this is the first time he told us the story
... He said if I was like 80years old then watching it wouldn't be so
bad, but at my age I have so many more years for it to turn cancerous
that I made a good decision .... lets just hope its gone when I get
checked in 8 weeks, so no more RFA burning...I will still have to have
the yearly endoscopy to make sure it don't come back, or if it does they
can burn it off.....I am also hoping something changes in the next 8
weeks so I can have the propofal next time ughhhh it just makes me
shudder thinking of having it done again !!!!!!!!!
I
went to the naturalpaths today she is checking my Free T3 and my
reverse 3T and CBC and some other stuff and I am doing the cotisol
saliva test tomarrow I have my little spit sponges all ready to go......
also going to take my temp each morning I have been running at above 99
and I am not sick other than my everyday complaining self ...she did the
light in my eyes and my pupils do not stay constricted like they are
supposed to and my tongue in lumpy on the sides thats a sign of food
allergies ..I will go back in 2 and a half weeks for my test results she
was also concerned because the WBC from my test results I had last year
were all so high, she said looks like something is going on somewhere
..OMG please let this be my answer !!!!!! anything is better than not
knowing what in the heck is wrong ...I am to go sugar free,gluten free,
egg free and dairy free for 4 weeks to see if that gives me some
improvements Thats going to be hard but if I could go through what I did
last year with my esophagus I can do this diet ..I am planning on Randy
and Andrew going to see her too...... Randy already takes thyroid meds
and Andrews tongue and pupils are doing the same as mine ...
Did not sleep well last night
I think its from being at my house day before yesterday and my eyes felt puffy when I did wake up from my sleepless restless night ...Now I am not looking forward so much to going home ..I just know I am going to go back to feeling like shit untill I can get the house cleaned completely out ..But its gotta be done so I am going to just get through it as best I can ..I guess there will be some whining and complaining her on the blog but I gotta keep it real right ...
Monday, April 18, 2016
Our belongings
Burning Eyes
My eyes are still burning from a trip out to the house last night ...I took some pictures off the wall and put our coats in bags ...I thought the burning would go away by morning but it hasn't dang...I also didn't sleep very well last night .. I have a feeling fighting them mycotoxins is going to be a pain in the ass ....It may be the plastic that's still hanging up till remediation is done I don't know ...
Rylan came home with a bit of a cough I am not sure from the house or swimming and getting a lil cold ...so other than that nothing new to report ...
Rylan came home with a bit of a cough I am not sure from the house or swimming and getting a lil cold ...so other than that nothing new to report ...
Sunday, April 17, 2016
A trip home
Rylan stayed the night with Randy last night ...I went out today to pick him up and decieded to get a few things done in the house so I took as many photos and pictures off the walls and boxed them in rubbermaids and also took all the coats off the table and put them in hefty bags..when we left it was cold and rainy and now yesterday and today Rylan was swimming in the pool Good Lord we have been gone so long now wow ...
OK also put all my old purses in hefty bags so I can go through them then toss them out ...So much stuff that will need to be thrown away but for now my focus was just on get it off the walls and table and bagged up to sort later.... My eyes burn pretty bad from being in there I am not sure how much is mycotoxins and how much is stinky contractor plastic hanging up what ever it is I hope my house don't smell like that when I get home its not a good smell...
At least I feel like I have done something and it lowered my stress level ...thinking positive thoughts that the drywall and painters will be there tomorrow and done by Wednesday well if they are done by Friday I will be satisfied...
Oh and Andrew started on leviquin I also sat at urgent care with hime for a couple hours the doc said his ear still looks bad bad....
OK also put all my old purses in hefty bags so I can go through them then toss them out ...So much stuff that will need to be thrown away but for now my focus was just on get it off the walls and table and bagged up to sort later.... My eyes burn pretty bad from being in there I am not sure how much is mycotoxins and how much is stinky contractor plastic hanging up what ever it is I hope my house don't smell like that when I get home its not a good smell...
At least I feel like I have done something and it lowered my stress level ...thinking positive thoughts that the drywall and painters will be there tomorrow and done by Wednesday well if they are done by Friday I will be satisfied...
Oh and Andrew started on leviquin I also sat at urgent care with hime for a couple hours the doc said his ear still looks bad bad....
I wanna go HOME !!!!!
I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!
Get the idea ..... I am taking Andrew to urgent care a freaking-gin for his ear ...Jebus its still throbbing no ENT called back last week I am getting frustrated .... I just want to go home I am happy I have a nice place to stay but NEVER in a million years did I think when I walked out my door February 15th that I would still be gone ..my bulbs have bloomed with out me ...my frogs have had their babys and the tadpoles are turning into frogs and I am missing it all .....
I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!
Get the idea ..... I am taking Andrew to urgent care a freaking-gin for his ear ...Jebus its still throbbing no ENT called back last week I am getting frustrated .... I just want to go home I am happy I have a nice place to stay but NEVER in a million years did I think when I walked out my door February 15th that I would still be gone ..my bulbs have bloomed with out me ...my frogs have had their babys and the tadpoles are turning into frogs and I am missing it all .....
I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!I wanna go HOME !!!!!
Saturday, April 16, 2016
A night off
Rylan went home to spend the night with Daddy ...Its so quiet here with him gone ..That is one thing when your on a sabbatical at least in our case is ..lil friends are not here to entertain your all day long LOL so you get all the fun things lil 9 years old like to do like ask you a billion questions about the universe the problem being is I don't know much so I really have to try and make my brain smarter to I don't look like a complete dummy hahahaha ...It makes Rylan feel extra smart though so thats a plus ....
Well I thought I was going to be back home this weekend per the text from the remeidiator guy whos words were "we should have everything wrapped up inside by Friday " I guess I should of asked what friday instead of thinking it would be the friday coming up ...Oh well ...
So in the mean time I ordered a ionic foot bath from amazon $250 ish bucks and yesterday 2 germ guardian air cleaners ..Trying to do all I can to get us and keep us healthy when we get home ...I seem to have developed allergies to pollen this year... yuck, yuck ....
Well I thought I was going to be back home this weekend per the text from the remeidiator guy whos words were "we should have everything wrapped up inside by Friday " I guess I should of asked what friday instead of thinking it would be the friday coming up ...Oh well ...
So in the mean time I ordered a ionic foot bath from amazon $250 ish bucks and yesterday 2 germ guardian air cleaners ..Trying to do all I can to get us and keep us healthy when we get home ...I seem to have developed allergies to pollen this year... yuck, yuck ....
Wednesday, April 13, 2016
They said friday but
I want to go home so BAD !!!! Don't get me wrong we have a nice welcome wonderful place to stay Thanks the Good Lord ,,But I wanna go home, I wanna see if it really going to be better and we can continue to get better .. I feel as if everything in my life is on hold and I am just holding my breath not knowing whats around the next corner ...
I am still tired everyday and I am not sure if I am really tired or just bored or what, but I just wanna go home ... I called our neighbors to see if the workers are there today, and they are not , the lead guy said everything should be wrapped up by Friday {{{ and they are not there today}}} it's Wednesday.... I am keeping everything crossed that they will be there tomorrow and Friday and I will go home Saturday..
Lots of work awaits but I don't care ...I also would like to put in a order for warm sunny weather and not rain ..The house will have to be completely open for all the cleaning and painting that is to be done I am still considering getting a big tent to hang out in outside if we need to escape the fumes...
I am still tired everyday and I am not sure if I am really tired or just bored or what, but I just wanna go home ... I called our neighbors to see if the workers are there today, and they are not , the lead guy said everything should be wrapped up by Friday {{{ and they are not there today}}} it's Wednesday.... I am keeping everything crossed that they will be there tomorrow and Friday and I will go home Saturday..
Lots of work awaits but I don't care ...I also would like to put in a order for warm sunny weather and not rain ..The house will have to be completely open for all the cleaning and painting that is to be done I am still considering getting a big tent to hang out in outside if we need to escape the fumes...
Tuesday, April 12, 2016
Mycotoxin Cleaning plans I am thinking of
I plan on going home friday or Saturday and I have already bought shockwave and Concrobium cleaners and now I am not sure if I want to use those, I also have looked into ozone machines ..AND honestly I am not sure I want to use those, my gut is saying use baking soda and lemon with some tea tree oil and wipe down all the walls.
Urggg there are so many suggestions on what to do what not to do and a person never knows what is going ot be right for them .. with our breathing sinus issues I just worry that maybe less is more in the way of cleaning since our systems have already been so degraded from living with mold for so long I worry anything we do may have a adverse affect ...
Went out to the house yesterday and it smells weird in there I hope its just the big sheets of plastic we still have hanging everywhere and when those are gone the smell will go with it ..
Andrew and I went to home depot and bought some paint for his bathroom and some mildew mold resistant primer and of course I am worried about using that too ..Good God I just worry over everything ..I just want us to continue to improve..
I am so very happy that we are going home the beginning of spring and summer I will have months to air out the house and clean with all the windows open and it will be hot and I plan on letting the house cook all summer and just spend more time in the swimming pool , we will see how that plan works when its 110 degrees outside LOL I will be buying a new window A/C just in case the heat is too much ..
The thing is mycotoxins are hard to get rid of and I have not found and sure fire plan to make them disappear except time lots and lots of time like years and years and I am scared of them as much or more so than toxic black mold ...
Urggg there are so many suggestions on what to do what not to do and a person never knows what is going ot be right for them .. with our breathing sinus issues I just worry that maybe less is more in the way of cleaning since our systems have already been so degraded from living with mold for so long I worry anything we do may have a adverse affect ...
Went out to the house yesterday and it smells weird in there I hope its just the big sheets of plastic we still have hanging everywhere and when those are gone the smell will go with it ..
Andrew and I went to home depot and bought some paint for his bathroom and some mildew mold resistant primer and of course I am worried about using that too ..Good God I just worry over everything ..I just want us to continue to improve..
I am so very happy that we are going home the beginning of spring and summer I will have months to air out the house and clean with all the windows open and it will be hot and I plan on letting the house cook all summer and just spend more time in the swimming pool , we will see how that plan works when its 110 degrees outside LOL I will be buying a new window A/C just in case the heat is too much ..
The thing is mycotoxins are hard to get rid of and I have not found and sure fire plan to make them disappear except time lots and lots of time like years and years and I am scared of them as much or more so than toxic black mold ...
Saturday, April 9, 2016
A house trip today
The boys and I went out to the house ...I sat inside for about 20 minutes the air in there felt kinda heavy and really dusty ..Its really hard to tell if I am going ot be able to toloerate the house The plan is a deep cleaning this weekend as the workers are supposed to be done on friday ...the carpets then will come out and new flooring put down in the living room... Andrew came in and started getting a stuffy nose with-in 5 minutes ...So I am not so sure about long term living and that makes me sad we worked so long and hard to have a nice home to live out our lives in and now I am just not sure ... it did test clear of any mold on the air test so it just might be a matter of a good deep cleaning..I pray it is ....
Plus I got so tired there, I am completely wiped out just from our visit but might be because there is no comfy place to sit since all the furniture is gone ... I am anxious to have my own home again for sure I just pray it works out ..
Plus I got so tired there, I am completely wiped out just from our visit but might be because there is no comfy place to sit since all the furniture is gone ... I am anxious to have my own home again for sure I just pray it works out ..
Going home Friday ..
Talked to Rusty our remediator ((well we texted)) and sounds like they will be all done with their part of the house by friday ...I am excited and fearful of going home ..I worry about mycotoxins that may still be hanging out and how powerful they will be with out their mold friends..we have been gone for 2 months and we left as if the house was on fire ...still living with the bare bones clothing I bought after we left the house...
Yesterday took andrew back to urgent care his ear infection is not clearing up so they put him on methopredsone... I hope this morning he is feeling better... Randy is fighting abscessed tooth and me I seem to have developed seasonal allergies , there is so much more pollen in the city ...
I added posts of the years of illness that plagued us that I honestly believe was mold related below ..so many time I posted how sick we were and just could not find the root cause ..so I would suggest reading it and see if any of it sounds like it could be something happening in your own family ...I may add more as I come across them I have been blogging for 11 years so I have a pretty good timeline of how it all started ...
Yesterday took andrew back to urgent care his ear infection is not clearing up so they put him on methopredsone... I hope this morning he is feeling better... Randy is fighting abscessed tooth and me I seem to have developed seasonal allergies , there is so much more pollen in the city ...
I added posts of the years of illness that plagued us that I honestly believe was mold related below ..so many time I posted how sick we were and just could not find the root cause ..so I would suggest reading it and see if any of it sounds like it could be something happening in your own family ...I may add more as I come across them I have been blogging for 11 years so I have a pretty good timeline of how it all started ...
Toxic Black mold past posts from before we knew what was making us sick...
This is a group from my past blogs whenI was getting really sick but didn't know why ..I will be sorting through them and getting them in better order at some point ..At this time I am in the process of finding them all and I will also be finding my posts from facebook to add to my blog at some point I am going to label these posts as "mold illness starting" ...I have been blogging for 10/11 years but pretty much stopped when I was sick for so long because all my posts would look about the same and just say "I don't feel good" ... its easier to scroll to the bottom then read up for it to make sense ..Thanks for reading and I hope it helps someone somewhere get answers to why they are sick and nothing is helping them feel better .... After each doctors trip where they found something wrong with me I would come home and cry tears of joy that finally there was a answer , The only thing is even though I did what I needed to and I never really got better better and its was so discouraging at one point I was sent to a psychiatrist ughhh that was very hard for me because I didn't think my prombelms were mental but at that point was out of answers for myself , she was very nice and let me know I was not mental prescribed more medications that I didn't take one was the meds that keep you awake during the day and she also wanted to up the dose of cymbalta I decided on my own I did not want to take those meds and i am glad I didn't ..I had been on cymbaltia but I didn't think it was helping me and I didn't want to take more so I weaned myself off of it ...
Received my results from my saliva testing at the natural-path doc ...My cortisol levels as you can see begin in the morning not even in the normal shaded part of the graph, No wonder I feel so lazy, tired and uninterested in anything..... other than things I have to do in order to get by everyday and I totally suck at those things .... I am completely and udderly exhausted all day/ all night....... along with the awful insomnia I suffer its a wonder to me I am even still kicking I honestly feel that bad !!!
From my blood test my vitamin D is critically low 24 for a person with autoimmune issues it should be at the very least 60 ..I am also very low on sodium, so I am to use extra salt ~ good salt ~ not plain old table salt....... we have been using the Mediterranean salt from Costco.. One of my friends the one who kept on encouraging me to go see the natural-path doc told me of a favorite salt she likes of course I can't remember what she called it LOL Who would of imagined there are different salts like that, not me that's for sure ..
My progesterone in the low end of normal at 24 ...22 is the bottom of the chart
My ESR has come down from 22 to 16 but my doc said ideal for me would be under 3 this is the test that tells how much you hurt~ I am not really sure how it does that ...
I have high normal white blood count as I usually do....... she is sure it because my body is fighting something, maybe the gluten that I also learned I am allergic to.... I misplaced my paper that has my gluten numbers on it, I will add the numbers when I find the paper and get a chance to ..My doc said I should not even let gluten/wheat touch anything I will be eating~ it is poison to me ..Her theory is that when foods are genetically modified some of our bodies know it and fight off the modifications as if its a invader in our bodies..
I still don't have the results of all my thyroid tests back yet and I see her again in 2 weeks to see if the herbs and vitamins are helping me feel better.... The one she may change if I am not feeling any better is the progenalon and change me to hydrocortazone ...I asked her if this could be the reason I feel so good and normal on prednisone and she said yes definitely, because that is a steroid and cortisol is a steroid our bodies make my body has just stopped making enough of it , due to stress or what ever my adrenals did all they could do then they just pretty much gave up its called adrenal fatigue... here is a link to a page I found yesterday that explains what it feels like pretty cl Adrenal Fatigue
Oh and I am on COD LIVER OIL ...yuck yuck yuck I hate fish and to have to ingest the liver of a fish completely grosses me out but if it makes me feel better I do it !!! I am also on high doses of vitamin D and some other herb type things nothing as gross as the cod liver oil though !!!!!!!
Tuesday, April 5, 2016
Coming down with something
It feels like a cold coming on now UGH I guess the timing is pretty good LOL
Here is a short slideshow of our coast trip
Here is a short slideshow of our coast trip
Monday, March 21, 2016
Found more water damage and another leak under our floor Toxic Black Mold
The water damage in our house is much worse than we thought ...the mold
remediators are there doing more testing and the whole floor from our
bathroom, clear to the dining room is wet from another water leak we
didn't even know was there ..I am not sure the leak has even been found
yet ...I need to call Randy and get a update ..My most important advice
to everyone is when your gut tells you something is wrong, very wrong,
follow your instincts...I pray we will get our health back
100% ...I am so glad I left that house as if it was on fire... it was a
very hard thing for me to do, just up and tell Randy we were leaving
and I would not come back till we found the problem ...I was tired of
seeing my kids and me sick all the time....... something was wrong and
turns out I was right ...Now I need to look back on my blog and see if
my illness started when the water heater leaked and we had it fixed... I
know it was around that time ...and that been since 2008 or 2009 ...
Saturday, February 27, 2016
Overwhelmed
I have so much responsibilities...and I get overwhelmed ..I have always
taken care of my family.. Randy and I have made sure we made good money
decisions..We help people when able, and also try to help others make
good choices ..sometimes, many times I have asked Randy if I can just
run away, if we can run away ...I don't ask for much from anyone,
honestly I really don't ask for anything from anyone for myself..ok I do
have Mindi come watch Rylan if I have to go to a appointment and I have
had to ask my mom to come watch him a few times..
I had been very sick the past few years...maybe you hadn't
noticed LOL "for the past 3 years" but basically if I cant do it on my
own or with Randy's help then we do without..I don't see very much of
this in others.. I have Randy to lean on he is my greatest support and
has been there for me and helped me with our decisions.. he works hard
everyday and complains very little.. I don't always have answers for
everyone..I feel good about things I have done and overcome in my life..
I am proud of myself and don't feel the need or care if others are
proud of me.. I KNOW what I have overcome and what Randy has overcome to
be the people we are, and we are pretty damn awesome...
I keep plugging along..I have a new chapter in my life and I
am just not sure how to go about doing things ..maybe I will write more
about it maybe I wont..Just feeling overwhelmed and lost right now and
would like to close the curtains, lock the doors, turn off my phone and
focus on me and my house but that is not going to happen !!!
Sunday, April 15, 2012
Puffy Face and headache
I think I am getting this allergy thing figured out ..I am not supposed
to be eating glutin or dairy so what did I eat yesterday frozen pizza
hmmm its odd because I can eat a cheese buger and feel fine the next day
so I am not exactly sure what gave me these symptoms this morning
..gonna start paying more attention to what I am eating ..I did have my
allergy test so I know what I am not supposed to eat but I do cheat and
sometimes I get away with it ...last week on Easter I ate foods that I
wasn't supposed to and ended up puffy and headachy then too...this
changing how you eat is very hard to do and not something that I have
been able to do in a quick fashion.
Friday, March 23, 2012
Invalid...
yesterday I moved one little cypress tree that involved digging it up
and then digging a new hole...I also covered my future stawberry beds
with black plastic then carried logs over to hold the plastic
down..Today I feel as if I have been hit by a truck ugh..still managed
to clean and dust a bookshelve in the bedroom and made turkey soup for
dinner...it was a hard day....hope I feel lots better tomarrow! !
Thursday, March 1, 2012
dry heave vomit episode again..
** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus
and some others I believe this is the cause of illness in my family so
am updating my labels to include Toxic Black mold *****woke up at 5am
felt fine went back to sleep till 8:30am then and had sharp pains behind
my belly button took a zofran and within 5 minutes I had the tingly
spit building in the back of my throat..ended up in the bathroom
dryheaving with the most awful sound ( something like a woman giving
birth) lasted long enough for Rylan who was in the kitchen to run and
tell Andrew to call 911 by this time it had eased up so I told them to
hold off on calling 911 and I laid on the couch exhausted for about a
half hour... rylan was so sweet brought me a puke bag..I also really
needed a diaper cause no vomit ever actually comes out but urine does.
there is so much pressure you just can't imagine...I do use the puke
bags for spit It builds up in my mouth when this happens...what brings
this on I have no idea.... its always completely out of the blue and
sudden,when it happens.
After that it was a nice day out so I went and weeded a flower bed and dug some of my bulbs that had already bloomed they are very pretty little flowers and I want them closer to the house where I can see them when they bloom, right now they were out in one of my what I call nursery beds....if any of the ones in the pots bloom.again I will post a pic or if not I will.see if I can find pics that I took of them last year or the year before...
After that it was a nice day out so I went and weeded a flower bed and dug some of my bulbs that had already bloomed they are very pretty little flowers and I want them closer to the house where I can see them when they bloom, right now they were out in one of my what I call nursery beds....if any of the ones in the pots bloom.again I will post a pic or if not I will.see if I can find pics that I took of them last year or the year before...
Thursday, November 3, 2011
Adrenal Saliva Test Results and More
Received my results from my saliva testing at the natural-path doc ...My cortisol levels as you can see begin in the morning not even in the normal shaded part of the graph, No wonder I feel so lazy, tired and uninterested in anything..... other than things I have to do in order to get by everyday and I totally suck at those things .... I am completely and udderly exhausted all day/ all night....... along with the awful insomnia I suffer its a wonder to me I am even still kicking I honestly feel that bad !!!
From my blood test my vitamin D is critically low 24 for a person with autoimmune issues it should be at the very least 60 ..I am also very low on sodium, so I am to use extra salt ~ good salt ~ not plain old table salt....... we have been using the Mediterranean salt from Costco.. One of my friends the one who kept on encouraging me to go see the natural-path doc told me of a favorite salt she likes of course I can't remember what she called it LOL Who would of imagined there are different salts like that, not me that's for sure ..
My progesterone in the low end of normal at 24 ...22 is the bottom of the chart
My ESR has come down from 22 to 16 but my doc said ideal for me would be under 3 this is the test that tells how much you hurt~ I am not really sure how it does that ...
I have high normal white blood count as I usually do....... she is sure it because my body is fighting something, maybe the gluten that I also learned I am allergic to.... I misplaced my paper that has my gluten numbers on it, I will add the numbers when I find the paper and get a chance to ..My doc said I should not even let gluten/wheat touch anything I will be eating~ it is poison to me ..Her theory is that when foods are genetically modified some of our bodies know it and fight off the modifications as if its a invader in our bodies..
I still don't have the results of all my thyroid tests back yet and I see her again in 2 weeks to see if the herbs and vitamins are helping me feel better.... The one she may change if I am not feeling any better is the progenalon and change me to hydrocortazone ...I asked her if this could be the reason I feel so good and normal on prednisone and she said yes definitely, because that is a steroid and cortisol is a steroid our bodies make my body has just stopped making enough of it , due to stress or what ever my adrenals did all they could do then they just pretty much gave up its called adrenal fatigue... here is a link to a page I found yesterday that explains what it feels like pretty cl Adrenal Fatigue
Oh and I am on COD LIVER OIL ...yuck yuck yuck I hate fish and to have to ingest the liver of a fish completely grosses me out but if it makes me feel better I do it !!! I am also on high doses of vitamin D and some other herb type things nothing as gross as the cod liver oil though !!!!!!!
Monday, October 3, 2011
Not a good Month
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
Jesus I am so tired of being sick..Rylans 2nd day of school he spent vomiting.. then a few days later I spent 2 nights in the hospitial about.got Rylans vomit bug and I cannot vomit due to my surgery for my acid reflux ..had to be taken by ambulance that was not fun the guy couldn't understand while I kept dry heaving and told me to stop doing it ughh I still need to call and compain about that well I spent from 4 in th afternoon till 4 in the morning dry heaving it was awful I felt as if I was going to die before the ambulance got here I took 3 zofran randy raced off to the pharmacy and got me a scrip my NP called for phenagren suppositorierys and I put two of those in and then had randy call the ambulance they gave me I don't even know how much zofran reglan and adivan they gave me I just know I spent the night yelling and sure something in me had burst,split or disinagrated ...so then after I got out Rylan got a cold and then Randy finally after 3 weeks they both went to the docs today they have sinus infections hopefully they will be feeling good soon ...I ran out of my pain meds and my doc won't refill them so I am back to being in pain constantly my house is a mess I am having trouble sleeping and am not keeping my CPAP on at night my ambien looks diffrent than it used to so maybe its just not working as well I don't know what the hell is up but I am not getting better always tired always in pain worried my doc will think I am just drug searching well I guess I kind of am because I am in pain always with out the meds at least this time I am not having the awful withdrawls just feel like I am back to square one..so depressing I am on cymbalta and will be asking to be weaned off its not helping with the pain and its very expencive and starting in January I will have to pay full price which I believe is $170 a month till our deductiable is met which I woundn't mind paying for if I felt it was actually doing something but I have been on it long enough that I can tell its not or at least I will get on something cheaper for my mental health which I feel is just getting worse because my physical health is just getting worse or at least not getting any better every medicine is a wait for a few months to see if it works waiting game and I am just so sick of it ...well we shall see what happens wednesday ........
Jesus I am so tired of being sick..Rylans 2nd day of school he spent vomiting.. then a few days later I spent 2 nights in the hospitial about.got Rylans vomit bug and I cannot vomit due to my surgery for my acid reflux ..had to be taken by ambulance that was not fun the guy couldn't understand while I kept dry heaving and told me to stop doing it ughh I still need to call and compain about that well I spent from 4 in th afternoon till 4 in the morning dry heaving it was awful I felt as if I was going to die before the ambulance got here I took 3 zofran randy raced off to the pharmacy and got me a scrip my NP called for phenagren suppositorierys and I put two of those in and then had randy call the ambulance they gave me I don't even know how much zofran reglan and adivan they gave me I just know I spent the night yelling and sure something in me had burst,split or disinagrated ...so then after I got out Rylan got a cold and then Randy finally after 3 weeks they both went to the docs today they have sinus infections hopefully they will be feeling good soon ...I ran out of my pain meds and my doc won't refill them so I am back to being in pain constantly my house is a mess I am having trouble sleeping and am not keeping my CPAP on at night my ambien looks diffrent than it used to so maybe its just not working as well I don't know what the hell is up but I am not getting better always tired always in pain worried my doc will think I am just drug searching well I guess I kind of am because I am in pain always with out the meds at least this time I am not having the awful withdrawls just feel like I am back to square one..so depressing I am on cymbalta and will be asking to be weaned off its not helping with the pain and its very expencive and starting in January I will have to pay full price which I believe is $170 a month till our deductiable is met which I woundn't mind paying for if I felt it was actually doing something but I have been on it long enough that I can tell its not or at least I will get on something cheaper for my mental health which I feel is just getting worse because my physical health is just getting worse or at least not getting any better every medicine is a wait for a few months to see if it works waiting game and I am just so sick of it ...well we shall see what happens wednesday ........
Wednesday, June 8, 2011
Finally, My toenail Meds..
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
I think I mentioned it before..
Something is wrong with my toenail, its ugly and has been since my stomach surgery... I picked up a fungus in the hospitial ughhh yuck
I finally remembered to tell my NP and she was able to prescribe fungus meds but it was at the sametime I had a sinus infection so she said to wait till I was done with antibiotics ...and I needed to get a liver test first to make sure my liver function is good so I went and got my blood drawn today its the first time I have felt well enought to do it .. I had told the NP at my follow up after my surgery he looked at me like I had 3 heads and said maybe I had bumped it :-/
My tooth I had the temp crown on is still very sensitive, so I am 99% sure I am going to need a root canal yeah me, NOT !! ...
Andrew had his hearing tested today and its fine ..so I guess his loud talking is just a habit and I am going to have to continue to tell him he needs to use his indoor voice..... He is a very loud talker and I was thinking maybe its because he couldn't hear..
I think I mentioned it before..
Something is wrong with my toenail, its ugly and has been since my stomach surgery... I picked up a fungus in the hospitial ughhh yuck
I finally remembered to tell my NP and she was able to prescribe fungus meds but it was at the sametime I had a sinus infection so she said to wait till I was done with antibiotics ...and I needed to get a liver test first to make sure my liver function is good so I went and got my blood drawn today its the first time I have felt well enought to do it .. I had told the NP at my follow up after my surgery he looked at me like I had 3 heads and said maybe I had bumped it :-/
My tooth I had the temp crown on is still very sensitive, so I am 99% sure I am going to need a root canal yeah me, NOT !! ...
Andrew had his hearing tested today and its fine ..so I guess his loud talking is just a habit and I am going to have to continue to tell him he needs to use his indoor voice..... He is a very loud talker and I was thinking maybe its because he couldn't hear..
Thursday, May 5, 2011
sinus pinus
so Andrew and I have sinus infections and maybe Rylan does too he is
still having bad green boogers so I took him in his doc was gone so we
seen the blood draw doc from when Rylan was a baby ..he wants to try
Rylan on a round of antibiotics. That sounds good to me he has been sick
for over a month with this breathing thing ...so he is on amoxacillion I
am augmaenton and Andrew is on Zpak .
Poor Andrew was so miserable last night with being stuffed up I am praying that is clears up today I have been giving him decongestentes but they are just not working very well I think maybe him I may go into town after Randy gets home and see about nasel spray or something..
Be nice if he was feeling somewhat better before then so we wouldn't need to go !!!
Poor Andrew was so miserable last night with being stuffed up I am praying that is clears up today I have been giving him decongestentes but they are just not working very well I think maybe him I may go into town after Randy gets home and see about nasel spray or something..
Be nice if he was feeling somewhat better before then so we wouldn't need to go !!!
Sunday, April 24, 2011
Hyperextended lungs..
** EDIT Feb 2016 We found Black mold in our home Stachey and Aspugillus
and some others I believe this is the cause of illness in my family so
am updating my labels to include Toxic Black mold please check out my blog here to follow as our story continues http://livingcreekside2012andbeyond.blogspot.com/ *****
Rylan has been having some breathing problems for the past month ..I took him to the docs about a month ago i thought he had swimmers ear from snorkeling int he bathtub he kept doing a wierd yawn thing... doc said his ears looked fine but his nasal passage was a swallowen and he probably had a virus and it could take a couple of months to clear up and thats probably what the problem was So I made a appointment for his 5 year old bday well child check up and she would see how he was doing then...The next day he woke with a fever so I figured ok it is a virus and he was sick so he was sick about a week with green boogies and cough then styarted to get better but then got sick with a cough and he was still doing the wierd yawn thing some days it was really aweful and Randy was very worried and I was too he honestly looks like his breathing problem was like what I have been going through so I took him back to the docs on last tuesday or was it monday well one of those days ..I told his ped how concerned Randy and I were about his breathing still andf how he had got sick got better and then got sick and his breathing was just getting worse ...she had him get a xray to rule out pnemonia and put him on a rescue inhailer...the results of the x-ray were no pnemnomania but his lungs are hyperextended so she is pretty sure he has asthma the resuce inhailer was not helping much so he is now on a steroid inhailer as well she said it may take a couple of weeks to start working and to call if he gets worse so thats whats up ...we are tearing out all our carpeting and getting rid of our clothlike furniture and getting something that is a little more suedelike Randy and I both had shiney type material but if we have to do that and get covers to wash once a week then thats what we will do..
We are also going ot be making a call to have someone comeout and get the dead roadent out of out heater vent ughh and I read up on asthma and it says to use raideant heat I think thats like our Mr heater buddy I am thinking about maybe going with wall heaters that run along the floorboards as the site said a furnace like we have now is not the best to use because it blows the dust around the room. Since we already live on a dirt road we really have to try some extra changes that those who do not live on a paved road may not need to do...If these changes do not work we will sell our propertie and move we love our property so are really hoping these chnages will help ..there is obviously a problem since both Rylan and I are now sick in this way.. I am just so thankful that Rylan has an answer and I didn't have to try and convince the doc that there is a problem, like I have had to do on my self........ I can tell by looking at him that what ever is wrong with me is also wrong with him at least as far as our breathing goes...
People who don't live my life with my children with my and there health issues have no clue what things are like here and if I was to leave any advise for my grandchildren and great grandchildren it would be to listen to your own head and your own heart ..when it comes to there care and well being you can't told by others what you should do follow your heart stand your ground... a word of advise from my own mother is if someone dosen't make you feel good about your self then distance yourself from them and surround yourself with those who do make you feel good about yourself !!!
Rylan has been having some breathing problems for the past month ..I took him to the docs about a month ago i thought he had swimmers ear from snorkeling int he bathtub he kept doing a wierd yawn thing... doc said his ears looked fine but his nasal passage was a swallowen and he probably had a virus and it could take a couple of months to clear up and thats probably what the problem was So I made a appointment for his 5 year old bday well child check up and she would see how he was doing then...The next day he woke with a fever so I figured ok it is a virus and he was sick so he was sick about a week with green boogies and cough then styarted to get better but then got sick with a cough and he was still doing the wierd yawn thing some days it was really aweful and Randy was very worried and I was too he honestly looks like his breathing problem was like what I have been going through so I took him back to the docs on last tuesday or was it monday well one of those days ..I told his ped how concerned Randy and I were about his breathing still andf how he had got sick got better and then got sick and his breathing was just getting worse ...she had him get a xray to rule out pnemonia and put him on a rescue inhailer...the results of the x-ray were no pnemnomania but his lungs are hyperextended so she is pretty sure he has asthma the resuce inhailer was not helping much so he is now on a steroid inhailer as well she said it may take a couple of weeks to start working and to call if he gets worse so thats whats up ...we are tearing out all our carpeting and getting rid of our clothlike furniture and getting something that is a little more suedelike Randy and I both had shiney type material but if we have to do that and get covers to wash once a week then thats what we will do..
We are also going ot be making a call to have someone comeout and get the dead roadent out of out heater vent ughh and I read up on asthma and it says to use raideant heat I think thats like our Mr heater buddy I am thinking about maybe going with wall heaters that run along the floorboards as the site said a furnace like we have now is not the best to use because it blows the dust around the room. Since we already live on a dirt road we really have to try some extra changes that those who do not live on a paved road may not need to do...If these changes do not work we will sell our propertie and move we love our property so are really hoping these chnages will help ..there is obviously a problem since both Rylan and I are now sick in this way.. I am just so thankful that Rylan has an answer and I didn't have to try and convince the doc that there is a problem, like I have had to do on my self........ I can tell by looking at him that what ever is wrong with me is also wrong with him at least as far as our breathing goes...
People who don't live my life with my children with my and there health issues have no clue what things are like here and if I was to leave any advise for my grandchildren and great grandchildren it would be to listen to your own head and your own heart ..when it comes to there care and well being you can't told by others what you should do follow your heart stand your ground... a word of advise from my own mother is if someone dosen't make you feel good about your self then distance yourself from them and surround yourself with those who do make you feel good about yourself !!!
Monday, February 28, 2011
Sick of being sick
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
Well I am healing very well from my surgery even ate Chinese food tonight OMG it was soo good .. My latest problem well not really my latest since its been hurting for going on 2 years is my shoulder it is now to the unbearable point I am on strong pain pills and taking 1 and a half pills 4 times a day and I am only supposed to be taking 1 pill 3 times a day ...
This really sucks because I still have the pain it just dulls it a little I see the ortho surgeon Monday and I am so hoping he will just get me in and get this bone overgrowth taken care of then to get my stupid tooth fixed , then my tennis elbow that been hurting for almost a year now and then hopfully I can get a answer for my back but my most pressing issue is my shoulder ..
I want my life back I am tired of being almost a invalid... I have a 4 year old that needs to go out and have fun not take care of his sick mom all the time and just go to the doctors every outing ...Its a good thing I am on antidepressants because I would be pretty depressed if I wasn't ...Things will get better...I just have to stay confident of that, I am am now knowing the problems, it just takes time to get them fixed ...
Well I am healing very well from my surgery even ate Chinese food tonight OMG it was soo good .. My latest problem well not really my latest since its been hurting for going on 2 years is my shoulder it is now to the unbearable point I am on strong pain pills and taking 1 and a half pills 4 times a day and I am only supposed to be taking 1 pill 3 times a day ...
This really sucks because I still have the pain it just dulls it a little I see the ortho surgeon Monday and I am so hoping he will just get me in and get this bone overgrowth taken care of then to get my stupid tooth fixed , then my tennis elbow that been hurting for almost a year now and then hopfully I can get a answer for my back but my most pressing issue is my shoulder ..
I want my life back I am tired of being almost a invalid... I have a 4 year old that needs to go out and have fun not take care of his sick mom all the time and just go to the doctors every outing ...Its a good thing I am on antidepressants because I would be pretty depressed if I wasn't ...Things will get better...I just have to stay confident of that, I am am now knowing the problems, it just takes time to get them fixed ...
Tuesday, November 2, 2010
How many pokes...
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
How many pokes did it take to get a IV in me today 9 yes NINE ...I told them I was hard to get a iv in ...they said I could say stop if wanted and come back another day, But I wanted my test done ..Yesterday I went for the first part of a nuclear treadmill stress test I only had to have the dye injected then pictures of my heart taken ..Today I had to have a IV so the could inset the dye while I was walking on the treadmill ...Mindi stayed home from school to watch the boys for me and I didn't want to have her or Randy miss more school or work because of me ... My Mom is taking care of my Grandmother who is not doing very well she fainted in wal-mart today after a horrible stomach pain and is now it the hospital, her kidneys have just about shut down from being dehydrated ....Tomorrow i will go back in to have my barrettes burned off again ...Today when they were taking pictures of my heart it had a couple of racing episodes I don't know if that means anything or not the picture guy just asked me if I felt them...... I actually only felt it once ..so now I just wait to see what the cardiologist has to say ..
My IV bruises both of my wrists look pretty much the same so I only posed one
How many pokes did it take to get a IV in me today 9 yes NINE ...I told them I was hard to get a iv in ...they said I could say stop if wanted and come back another day, But I wanted my test done ..Yesterday I went for the first part of a nuclear treadmill stress test I only had to have the dye injected then pictures of my heart taken ..Today I had to have a IV so the could inset the dye while I was walking on the treadmill ...Mindi stayed home from school to watch the boys for me and I didn't want to have her or Randy miss more school or work because of me ... My Mom is taking care of my Grandmother who is not doing very well she fainted in wal-mart today after a horrible stomach pain and is now it the hospital, her kidneys have just about shut down from being dehydrated ....Tomorrow i will go back in to have my barrettes burned off again ...Today when they were taking pictures of my heart it had a couple of racing episodes I don't know if that means anything or not the picture guy just asked me if I felt them...... I actually only felt it once ..so now I just wait to see what the cardiologist has to say ..
My IV bruises both of my wrists look pretty much the same so I only posed one
Monday, October 18, 2010
Off to the allergists today
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
I wonder what he will find ...I can't think of any one thing that sets me off, so we will see :-)
I wonder what he will find ...I can't think of any one thing that sets me off, so we will see :-)
Wednesday, October 13, 2010
Sick
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
So for the first time since I have started my breathing problems a year and a half ago, I am sick with something lung related....... ughh I am thinking bronchitis because its burning when I breath in ...I will wait to see how I feel tomorrow before I make a decision about going to the doctors ..who knows maybe it will jump start my lungs into acting like they are supposed to again...
So for the first time since I have started my breathing problems a year and a half ago, I am sick with something lung related....... ughh I am thinking bronchitis because its burning when I breath in ...I will wait to see how I feel tomorrow before I make a decision about going to the doctors ..who knows maybe it will jump start my lungs into acting like they are supposed to again...
Tuesday, October 12, 2010
I love My Gastro Doc...
He called me twice today :-) the first time I was still sleeping because
I sleep till oh about noon these days thanks to a active spoiled little
boy who keeps me up till midnight or later LOL I have always been the
lets get to bed soon as its dark outside kind of person and that is not
me anymore LOL...
So anyways I called the office this afternoon just thinking I would let Deb his nurse know that I was feeling better, and Dr H must of left a message at the desk that if I called, he himself would call me back and sure enough at 5 pm he called to see how I was feeling and if the burning was gone and that yes it definitely could of been yeast overgrowth in there, the steroids shots I had in my esophagus make me much more susceptible to that happening, he wanted to know how my swallowing was doing as well ..I let him know for the most part its ok but once in a while I have to grunt and struggle just a little to get stuff down he said I may have a bit of trouble swallowing for the rest of my life. I assured him that this is nothing compared to what I had gone through and that would be ok if this was life long ....so anyways he was really understanding and concerned and that made me feel really good....
So anyways I called the office this afternoon just thinking I would let Deb his nurse know that I was feeling better, and Dr H must of left a message at the desk that if I called, he himself would call me back and sure enough at 5 pm he called to see how I was feeling and if the burning was gone and that yes it definitely could of been yeast overgrowth in there, the steroids shots I had in my esophagus make me much more susceptible to that happening, he wanted to know how my swallowing was doing as well ..I let him know for the most part its ok but once in a while I have to grunt and struggle just a little to get stuff down he said I may have a bit of trouble swallowing for the rest of my life. I assured him that this is nothing compared to what I had gone through and that would be ok if this was life long ....so anyways he was really understanding and concerned and that made me feel really good....
Thursday, October 7, 2010
But I would be Calling everyday ..
So I broke down and called my gastro doc explained my problem and was told I need to call right away about things ...
Good God, if I called right away about things I would be on the phone with someone every day a few times a day ..
the only reason my blogging has gone downhill is because all I ever do is complain about how I feel everyday ...
I know she means well but its so hard.. Last time when I was regurgitation and vomiting every time I ate, she told me to only eat soft food, then I find out my esophagus was almost completely closed off.......at that time I was calling once a week..... this time I have called in a matter of 2 days because first I wanted to make sure its not just a bug or something...
Don't get me wrong she is very nice.. I just get frustrated ** mostly with myself and my own body**....my breathing was pretty good yesterday, now it feels worse again....
I am gonna go pop a klonopin and try and relax... she is having me call my regular doc and see if they can call in a script for some diflucan so while I was on the phone with them I asked if they could go ahead and refer me to a cardiologist, that's what I went in for the last time about a month ago and for whatever reason I can't remember the referal wasn't made...
so anyways I am back to blogging and I guess it will be mostly about my health because that is pretty much what consumes my every waking thoughts these days !!!!!!!!!
Good God, if I called right away about things I would be on the phone with someone every day a few times a day ..
the only reason my blogging has gone downhill is because all I ever do is complain about how I feel everyday ...
I know she means well but its so hard.. Last time when I was regurgitation and vomiting every time I ate, she told me to only eat soft food, then I find out my esophagus was almost completely closed off.......at that time I was calling once a week..... this time I have called in a matter of 2 days because first I wanted to make sure its not just a bug or something...
Don't get me wrong she is very nice.. I just get frustrated ** mostly with myself and my own body**....my breathing was pretty good yesterday, now it feels worse again....
I am gonna go pop a klonopin and try and relax... she is having me call my regular doc and see if they can call in a script for some diflucan so while I was on the phone with them I asked if they could go ahead and refer me to a cardiologist, that's what I went in for the last time about a month ago and for whatever reason I can't remember the referal wasn't made...
so anyways I am back to blogging and I guess it will be mostly about my health because that is pretty much what consumes my every waking thoughts these days !!!!!!!!!
Wednesday, October 6, 2010
Jesus,Joseph and Mary
***EDIT I believe we had been suffering from Toxic black mold I found out in Feb 2016 ****
Why, why, why ........
Can I not just get better and feel better? ...My stomach and esophagus have been sore and burning since yesterday..... I was telling Randy about it tonight and he suggested maybe I have thrush again ..
I think he may be right, it is that kind of feeling, but its not in my mouth where a doc could see it and I would have to get another endoscopy to see it and get it diagnosed "I'm pretty sure" ...I just don't know what to do, seems like all I do anymore is complain about something being wrong with me rrrrrr tired of it, really am !!!!!!!!!!!
Why, why, why ........
Can I not just get better and feel better? ...My stomach and esophagus have been sore and burning since yesterday..... I was telling Randy about it tonight and he suggested maybe I have thrush again ..
I think he may be right, it is that kind of feeling, but its not in my mouth where a doc could see it and I would have to get another endoscopy to see it and get it diagnosed "I'm pretty sure" ...I just don't know what to do, seems like all I do anymore is complain about something being wrong with me rrrrrr tired of it, really am !!!!!!!!!!!
Monday, October 4, 2010
"Milk of amnesia"
The hospital called today to see how I was feeling and I told them about
the shortness of breath and she said it could be from the Fentanyl that
they also give when they knocked me out with the Propofol that would
make since, since my breathing has improved some each day now ...still
going to the allergist for sure ...just thought I would update :-)
I also guess its normal to be forgetful after the propofol, I just read this on wikipedia
**Due to its amnestic effects and appearance as a white liquid, propofol has been humorously dubbed "milk of amnesia" by health workers.**
So its also normal to be a loopy afterwards and forget !!!!!! Ahhh I am not crazy yeah !!! I find myself having to ask Randy about stuff after wards or he will tell me stuff then I will be like oh yeah I remember that now ..
I always wake up so happy from the propofol its wierd to think that Michael Jackson woke up that way everyday nice that he would of been happy but goodness how did he ever remember anything :-/ YIKES !!!!
By the way my breathing is still not as good as before but its not as bad as it was Friday... I am continuing to do my advair and plan to keep using it until my esophagus problem is taken care of and I am not having to go in every month and have procedures I really wanted to get my self off as it is very expensive almost $200 a month and we will have to meet our deductible again at the beginning of the year..I really just don't have a choice, I feel like I could die when I am having trouble breathing and its not a good feeling...
I also guess its normal to be forgetful after the propofol, I just read this on wikipedia
**Due to its amnestic effects and appearance as a white liquid, propofol has been humorously dubbed "milk of amnesia" by health workers.**
So its also normal to be a loopy afterwards and forget !!!!!! Ahhh I am not crazy yeah !!! I find myself having to ask Randy about stuff after wards or he will tell me stuff then I will be like oh yeah I remember that now ..
I always wake up so happy from the propofol its wierd to think that Michael Jackson woke up that way everyday nice that he would of been happy but goodness how did he ever remember anything :-/ YIKES !!!!
By the way my breathing is still not as good as before but its not as bad as it was Friday... I am continuing to do my advair and plan to keep using it until my esophagus problem is taken care of and I am not having to go in every month and have procedures I really wanted to get my self off as it is very expensive almost $200 a month and we will have to meet our deductible again at the beginning of the year..I really just don't have a choice, I feel like I could die when I am having trouble breathing and its not a good feeling...
Adding a allergist to the pot ..
OK I have made a appointment with an allergist maybe he will have the
answers I am seeking...Thanks Joanie for suggesting it and Lisa too for
giving me a number to call ...October 18th is when I go....... wish me
luck or to break a leg or something like that LOL God I hope I don't
find out I am allergic to all my favorite foods !!!
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some pervious posts throught the years of being sick all the time ..
Just doning a copy past I hope it looks ok and easy to read
Monday, February 29, 2016
Sciatica and mold photos grrrr ...
I have been feeling pretty good since I left the mold house ...then last
night Rylan had his 3rd bloody nose since we left 2 weeks ago and my
back and scatic nerve are really really hurting today it is the
mycotoxins putting up a fight, the yeast, the mold that's in our
body's.... I don't know ...Today I will buy lots of yummy organic
veggies to juice... lucky Jeanie has the same juicer that I do, so I
already know how to use it ...I will also get stated on bone broths,
Chicken will be it and I will make yummy healthy foods from it ...
I have hope for a healthy future for us now that I am 99.9% sure I know what has been making us sick its just going to take time ...oh and lots of money .... Jean said we can stay as long as we need to it will be helpful for us and for her she will be in the rehab for her broken hip about 3 more weeks and this healthy way of eating we are doing again will be very good for her recovery so things are going to work out ... for her and for us !!!
I recieved the saddest text from Randy last night
**** This is going to be a daunting task. I look around at all the memories, and wonder what we can keep and what must go. I want to wait until we talk to her expert before we throw too much away. I'll get rid of magazines that are of no value, that's easy. But when I see dr. Seuss books and Rylan school books I have a different feeling. Lord help us.****
That made me cry its very hard to look around your home all the memory's of past trips and gifts from family who have passed on things that really are not replaceable for the feeling you have when you look at them, so those things will be stored untill we can figure out how to clean them or at the very least we will know we still have them we just wont look at them everyday ...My lil Wyatts foot and hand mold , Tegan and Taylors handprint footprint tiles just so many things ...and it not something he can really do his own so I am planning when the weather gets a lil nicer and all the doors and windows can be open I will go in that house to help but I will not allow the boys inside under any circumstance I just read this morning about a 11 year old boy who died at 11 years old he had mold in his bedroom and was healthy till 11 then had a anurisumwas it from the mold or just his lot in life ??? I don't know but I certianly do not want to take a chance Rylan has already lived in it his whole life and it scares me it was hidden you wouldn't even know it was there my house is not like the pictures you would see if you google toxic mold house this is what our mold looks likethis was hidden in my closet behind a rubber maid tote
And this grew after our roof leaked we had the roof replaced last summer but I never knew that this could be hiding mold it just looks water damaged...The way we learned our roof was leaking it the snow melt in 2014 was a drippy mess on our sliding glass doors at first we thought it was from when the deck roof meets the house but that spot on the ceiling that had been the size of a half dollar grew..I believe the roof probably had a lil leak the whole time we have lived there but I can not be sure
So you see what I mean and of course I have killed mold spots here and there over the years with bleach and that is a huge no no because once you kill the mold it send off mycotoxins that make you even sick that the mold ughhh ...
I have hope for a healthy future for us now that I am 99.9% sure I know what has been making us sick its just going to take time ...oh and lots of money .... Jean said we can stay as long as we need to it will be helpful for us and for her she will be in the rehab for her broken hip about 3 more weeks and this healthy way of eating we are doing again will be very good for her recovery so things are going to work out ... for her and for us !!!
I recieved the saddest text from Randy last night
**** This is going to be a daunting task. I look around at all the memories, and wonder what we can keep and what must go. I want to wait until we talk to her expert before we throw too much away. I'll get rid of magazines that are of no value, that's easy. But when I see dr. Seuss books and Rylan school books I have a different feeling. Lord help us.****
That made me cry its very hard to look around your home all the memory's of past trips and gifts from family who have passed on things that really are not replaceable for the feeling you have when you look at them, so those things will be stored untill we can figure out how to clean them or at the very least we will know we still have them we just wont look at them everyday ...My lil Wyatts foot and hand mold , Tegan and Taylors handprint footprint tiles just so many things ...and it not something he can really do his own so I am planning when the weather gets a lil nicer and all the doors and windows can be open I will go in that house to help but I will not allow the boys inside under any circumstance I just read this morning about a 11 year old boy who died at 11 years old he had mold in his bedroom and was healthy till 11 then had a anurisumwas it from the mold or just his lot in life ??? I don't know but I certianly do not want to take a chance Rylan has already lived in it his whole life and it scares me it was hidden you wouldn't even know it was there my house is not like the pictures you would see if you google toxic mold house this is what our mold looks likethis was hidden in my closet behind a rubber maid tote
And this grew after our roof leaked we had the roof replaced last summer but I never knew that this could be hiding mold it just looks water damaged...The way we learned our roof was leaking it the snow melt in 2014 was a drippy mess on our sliding glass doors at first we thought it was from when the deck roof meets the house but that spot on the ceiling that had been the size of a half dollar grew..I believe the roof probably had a lil leak the whole time we have lived there but I can not be sure
So you see what I mean and of course I have killed mold spots here and there over the years with bleach and that is a huge no no because once you kill the mold it send off mycotoxins that make you even sick that the mold ughhh ...
Saturday, February 27, 2016
A new me
So I was thinking today ...after getting Mindi home and on some good
pain meds as I was driving by the hip clothing store over in the old
Rite aid complex and realized this is my chance to totally change up my
wardrobe, since all my clothes are going in the trash ..what kind of
style do I want to be ? I am starting from scratch and not going to have
hordes of clothes I never wear ever again.... I want a nice selection
of about 20 items to mix and match not my usual clearance isle and
goodwill selections...I might be a new and improved version of me soon
...right now we are living in cheap pajamas and 1 pair of pants and a
shirt for town but I am going to have to get something soon ...
Run Run as fast as I can .....
Today my Randy finally got to see how our Rylan breathing has improved
since we left mold house.. I am so happy.. I was so scared to even leave my home, knowing it was so hard for
me to do without my Randy's blessings ...Things are turning for the
better he is accepting that it is our house making me and the boys sick
and now he seen the proof ...Randy works long hours and we only seen him
about 15 minute a night because he is staying at mold house to care for
our animals and he works very long hours ...Rylans air hunger is almost
completely gone.. though he gets out of breath quickly, while playing,
that may be life long I am afraid, since he has lived in that house his
whole life ... Randy took him to the park, while I went to the ER
with Mindi who has pneumonia ( she does not live with us) So for
those who are scared like I was of leaving, and what people think, just
give yourself permission to do what feels right in your gut ...My gut
said run for your lives, so I did ....
Friday, February 26, 2016
Day 10 out of Mold house
Well its Day 10 out Rylan breathing is finally looking like its
improving ...I stll wake up clear headed and thats good Andrew has a bad
case of jock itch going and from what I understand yeart and mold go
together hand in hand so I am thinking his body is detoxing by doing
that he would get that at mold house to along with thrush and I battle
yeast as well ...Mindi has been very very sick for the past 3 weeks and
is on her 3rd round of antibiotics she does not live in mold house and
has not for years she just got some really bad chest thing going on ..I
feel like I will be better able to blog better when my kids are feeling
better its very stressful ...Andrew in pain for a year with that stupid
boil scare ,Rylan not breathing right , Mindi so sick I think she
should be in the hospital and it all scares me to the point that I just
have to keep myself calm ...and my eyes still are a bit fuzzy looking at
the computer screen hopefully that will improve over time ...Randy and i
have not really had time to talk my phone is crap so can't talk on it
and he has to rush to mold house everyday to feed the animals ..So our
game plan is not set in stone yet ...Still need to talk to the
remeiderator guy and find out costs and stuff I want to get a travel
trailer to live in on the property and wait till the heat of summer to
do the house and give it a good time to completely dry out after all
this rain ...
Tuesday, October 2, 2012
ughhh I have been sick for over a month
I have been sick since the first week of school ughh...not sick enough
to go to the docs cause I think they would just say its allergies or
something but I don't feel good...just getting over the yucky cough and
now a sore throat, seems I have a weak constitution and I am not liking
it one bit..today I am going to try and get my coupons clipped and go
shopping but the chair and a nice warm blanket sounds so much better
right now ...
we have cub scouts meeting tonight Randy and Rylan might just have to go themselves I hate missing out on it but like I said I just don't feel good..I am hoping to get the call about getting the epidural in my lower back today I called and left a message yesterday about it I was supposed to call about a month ago but then my Dad got sick and I have been so busy with him I was to tired to even call and make the appointment ..
Lets see Mindi now has my Grandmas car so she is mobile again maybe I will send her in to do the coupon shopping if I get everything together she has been cooped up here so I think she might enjoy the outing ...
we have cub scouts meeting tonight Randy and Rylan might just have to go themselves I hate missing out on it but like I said I just don't feel good..I am hoping to get the call about getting the epidural in my lower back today I called and left a message yesterday about it I was supposed to call about a month ago but then my Dad got sick and I have been so busy with him I was to tired to even call and make the appointment ..
Lets see Mindi now has my Grandmas car so she is mobile again maybe I will send her in to do the coupon shopping if I get everything together she has been cooped up here so I think she might enjoy the outing ...
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