Tuesday, April 19, 2016

Notes from my FB though the years of being sick

Total sleep time 323
sleep latency 45 minutes
REM sleep latency 380 minutes (don't know how that could be higher than I slept maybe its supposed to be 38 minutes)
436 arousals and 38 awakenings
sleep efficency 59.7%
stage 1 sleep 14.6 %
stage 2 sleep 72.4%
stage 3 sleep 3.7%
REM sleep 3.7%

396 obstructive apneas
78 obstructive Hypopneas
average duration 19.2 seconds
some of the obstructive Hypopneas 38.5 seconds
oxygen at its lowest was 76%
and I had a total of 44 minutes with my oxygen below 90%

Here is a link to a page that explains more about what the numbers mean

http://apneasupport.org/about2344.html

I can't wait to get my cpap machine.... I go for another sleep study tomorrow night to test out the cpap machine.. the doctor said I might need to get a bipap machine that kinda breaths in and out for me because of how bad my apnea is ..
No wonder I am so darn tired all the time ... 



So my doc thinks that I have a false positive for a blockage in my heart.....This happens in 10% of tests  and there is no way to know for sure if its really negative unless I have a heart cath.............I really like this doctor, he is very down to earth and  nice and has been doing this for years.... he listened to everything I had to say and my worries........ he felt so bad that he had me take this test now, he was so positive that it would just be normal so for this to happen he was a bit dumbfounded LOL I don't think he totally understands that odd stuff like this happens to me and/or my kids quite often :-/....he let me decided what I think I should do ....sooo right now I am just going to get my gastro problems fixed, see the ENT about my vocal cords to see if either one of those fixes my breathing problem and if not I am going to call him and we will discuss the cardiac cath then ...
             Gosh you guys this is so frustrating knowing what to do.......
                   if its something rare or off the wall it usually happens to me or my kids.....How come it can't be the really awesome stuff like winning 30 million in the lottery, ok so I hardly ever buy tickets maybe that's why I haven't won....so anyways here I am basically back to square 1 of why I can't breath right :-(
                  Maybe I should start smoking again since I am so darn healthy :-) I think my heart and lungs are rebelling against me for taking away the nicotine...You know this doc and the pulmonoligist  both think its stress related, maybe smoking really did ease my stress levels more than people realize ..Its just so expensive, honestly though, I think it would be much cheaper then all I have spent on doctors and medicines hmmmm and I loved smoking........ I quit for my health, and that has got me nowhere... I have learned that if your not getting the you need to quit smoking lecture, you get the your to fat lecture, now that I have been loosing weight I wonder what lecture will be next......... I am guessing it will be the you know your getting older lecture :-)
   here is a link that talks about the test  I had
http://www.heartsite.com/html/isotope_stress.html


After my Ablation ((which they don't use propofal for anymore and I am totally upset about that, because I had to swallow that tube before I was totally asleep not fun !!!)) anyways My doc told a story about another of his patients that had this barrettes and decided to just get endoscopy to watch it each year, instead of getting the RFA as I am... One time she had just a little spot of cancer that was taken out, but it was already to late and she died 4 years later ..I am guessing she died fairly recently because this is the first time he told us the story ... He said if I was like 80years old then watching it wouldn't be so bad, but at my age I have so many more years for it to turn cancerous that I made a good decision .... lets just hope its gone when I get checked in 8 weeks, so no more RFA burning...I will still have to have the yearly endoscopy to make sure it don't come back, or if it does they can burn it off.....I am also hoping something changes in the next 8 weeks so I can have the propofal next time ughhhh it just makes me shudder thinking of having it done again !!!!!!!!!


I went to the naturalpaths today she is checking my Free T3 and my reverse 3T and CBC and some other stuff and I am doing the cotisol saliva test tomarrow I have my little spit sponges all ready to go...... also going to take my temp each morning I have been running at above 99 and I am not sick other than my everyday complaining self ...she did the light in my eyes and my pupils do not stay constricted like they are supposed to and my tongue in lumpy on the sides thats a sign of food allergies ..I will go back in 2 and a half weeks for my test results she was also concerned because the WBC from my test results I had last year were all so high, she said looks like something is going on somewhere ..OMG please let this be my answer !!!!!! anything is better than not knowing what in the heck is wrong ...I am to go sugar free,gluten free, egg free and dairy free for 4 weeks to see if that gives me some improvements Thats going to be hard but if I could go through what I did last year with my esophagus I can do this diet ..I am planning on Randy and Andrew going to see her too...... Randy already takes thyroid meds and Andrews tongue and pupils are doing the same as mine ...

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